I was 32 when diagnosed and 28 at the onset of
symptoms starting. The hardest part has been
going from a very active physically fit woman
who was a competitive runner, gymnast and
dancer, to someone who at times can't walk at
all or lift my arms above my shoulders.
Not being able to see my kids school
performances etc due to double vision really
broke my heart at times. You will see a photo of
my hospital bands, at one stage they were my
hospital admissions for 6 months, when my MG
was not controlled. That I feel robbed me of a
lot of time with my family.
I have managed to pull through a crisis after
being hospitalised and intubated, and I haven't
required the use of a wheelchair for quite some
years now.
If I can take a positive from having MG it would
be that because my children have witnessed my
strength and physical abilities and then my
decline with MG it has made them very
independent resilient and empathetic caring
individuals and I'm so grateful to have them and
my husband, they are all such a huge support to
me at times of need, I love them all very much.

MG is really hard to live with. MG can be
intermittent. It's like grieving all over again when
you are okay but then go through a flare or
worse go into crisis and all of a sudden can't
walk talk swallow or do things on your own
again.
It's also super draining when treatments that
work for you add weight to your body which in
turn makes it even harder to move your
muscles.
2025.Wooden panel, acrylic,resin and mixed media, 30.5 x 30.5 x 5.5cm

The mental side of
having MG is just as
debilitating as the
condition itself. Having
droopy eyes also
makes you feel
unwelcome or
abnormal in social
settings. I tend to
spend a lot of time at
home now because of
the lack of awareness
of what's wrong with
me when my eyes are
droopy.