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Kathleen Stock has written a column in the Times asking why so many young women are suddenly using walking sticks. She calls their conditions "vague syndromes." She raises the spectre of "social contagion." She acknowledges, almost in passing, that doctors have a long, well-documented history of not believing young women when they report symptoms. And then, in the very same piece, she does this very thing.

I want to be careful here, because it would be easy to write this as pure fury, and fury is easy to dismiss. So let me be precise about what I'm objecting to, and why I think it matters far beyond one newspaper column.


The argument that eats itself


Stock's piece contains its own contradiction, and it's worth sitting with it rather than rushing past it.

She notes that women's pain has historically been minimised, medicalised as anxiety, or waved away as stress. That's true, and it's good that she says it. But then she pivots: this time, she suggests, the pattern is different. This time the young women reaching for mobility aids are not an underserved population finally being seen, they're a trend, a contagion, a generation performing fragility because disability has somehow become desirable.

You cannot hold both of these positions with a straight face. Either doctors and commentators have a pattern of not believing women's bodies, or a rise in visible disability among young women is best explained by fashion and TikTok. Stock wants credit for acknowledging the first while doing the second in the same breath.


What a walking stick is actually for


Here is the part that I think reveals the whole piece for what it is. Stock argues that people who spend their time sitting or lying down become less fit and feel worse, and suggests, in effect, that young women should be encouraged to stop leaning on their aids and get moving.

But a walking stick is the getting moving. That's the entire point of it. Mobility aids don't take people out of the world, they're what lets people re-enter it. The alternative to a stick, for a lot of us, isn't walking unaided. It's not walking at all. It's the couch, the missed shifts, the cancelled plans, the shrinking radius of a life. If Stock is worried about deconditioning, she is worried about precisely the thing a walking stick prevents, and worried about it while looking directly at the evidence that it's working, because the young women she's writing about are out on the street, being seen, participating.

The only way this makes sense as an argument is if the real objection isn't mobility aids at all. It's who's using them, how young and how visibly. There's an old idea underneath all of this, that to use an aid is to be weak, fragile, seeking pity. Stock's invocation of stiff-upper-lip stoicism as the alternative is that idea in its oldest clothes. It's not new insight dressed as concern. It's the same instruction women have been given for generations: don't make a fuss, don't ask for help, suffer quietly and you'll be respected for it. That instruction has never made anyone healthier. It has only made them quieter about being sick.


This is a public health story, not a cultural war


What actually changed, demographically, in the last five years? We lived through a pandemic that killed roughly seven million people worldwide and left millions more with lasting illness. Research has repeatedly shown that post-viral conditions, Long Covid among them, disproportionately affect women, and that conditions like POTS, dysautonomia, ME/CFS and fibromyalgia have surged in its wake. Estimates put the number of Americans disabled by Long Covid alone in the millions.

That is not a marginal detail. That is the headline. If you are asking "why are there suddenly more young women with unstable, unpredictable bodies," and you don't lead with "we just lived through a mass-disabling event," you are not asking the question in good faith, you're asking it to infuriate and antagonise for click-bait.

The genuinely dangerous part isn't that Stock got the explanation wrong. It's the message the piece sends to anyone currently in the position I was once in: that reaching for support is suspect, that disability has to be earned through visible suffering to be believed, that using a stick invites public judgement rather than public acceptance. That message doesn't make anyone better. It makes them hide longer, present later, and get sicker in the meantime. Illness left unaddressed doesn't resolve itself out of embarrassment. It progresses.


What that message cost me


I have Ehlers-Danlos Syndrome, POTS, and dysautonomia. I also, it turned out, had a serious autoimmune disease underneath all of it, the thing actually driving the rest.

Before any of that had a name, I reported fatigue, a racing heart, light-headedness, temperature regulation that had stopped working, breathing that didn't feel right, a body that was quietly failing. I was told it was anxiety. Stress. New motherhood. The condescension had a very long list of names, and none of them were the right one.

I had to fight my own internalised bias before I could even fight my doctors'. I didn't want to use a walking stick after I dislocated my hip, not because I didn't need one, but because I was afraid of being stopped in the street and accused of faking it. That fear isn't paranoid. It's the exact scenario a piece like this one invites its readers to enact: to look at a young woman with a stick and wonder, out loud or in your head, whether she's really earned it.

A doctor once asked me why I was in a wheelchair. I had to tell him I didn't know, because every time I'd tried to explain, I'd been dismissed before I finished the sentence. By the time I was finally diagnosed with POTS and dysautonomia, I had largely given up on the medical profession. Not because I stopped being sick, but because the emotional and financial cost of trying to be believed had become its own illness.

It was a cardiologist who finally changed that. He apologised for every appointment before his. He confirmed the POTS and dysautonomia, and then said he suspected something sinister was underneath it. He was right. That "something sinister" was life-threatening, and it had been sitting there the entire time I was being told to relax.

If I had followed the advice underneath Stock's column... I would not have survived long enough to write this piece.


Why this matters now


The one genuinely good thing to come out of the pandemic is that conditions like POTS, EDS, ME/CFS and dysautonomia, long dismissed, chronically underfunded, poorly understood, are finally getting attention. Research is catching up. Diagnosis times, while still far too long, are starting to shorten. People are finding each other, comparing notes, and recognising patterns that used to take individuals decades to piece together alone.

A column like this doesn't just get the science wrong. It spends the credibility of a prominent, influential writer pushing back against that progress, telling a generation of young women, right as they're starting to be taken seriously, that they should be quieter, more sceptical of their own bodies, more embarrassed by the tools that let them function. That's not a contrarian take. It's a public health catastrophe, aimed at the vulnerable, for the crime of being in society while using an aid.

I know what it is to grapple with the stigma of using a walking stick/ wheelie walker/ wheelchair as a young woman. I know what its like to feel like to push through and suffer for onlookers comfort rather than your own function. I don't wish that particular kind of harm on anyone, least of all on young women who are already fighting to be believed.

 
 
 

A little life update and a peek into how I approach the hard stuff.


Before you read on: I'll briefly mention a medical procedure. This is a no-angst post, but if medical content isn't something you can take in today, that's okay ... come back another time. I take trauma-informed leadership seriously, and I only ever want to put good into the world.


You are the guardian of your mental health. Fight like a gladiator to protect it.



I'll be starting plasmapheresis next week, which means I'll be admitted to hospital for a few days each week for the foreseeable future. I wanted to give a heads up that I may be less available, less productive, and might drop out of plans. Please don't take it personally, it comes from a place of loving life and wanting to protect my capacity so I can show up for the people and things that matter most to me.


But this isn't a doom and gloom post. I want to talk about how I *prepare*.


I am a firm believer that we are the guardians of our own mental health, especially when facing things that are painful, scary or distressing. When you're walking into situations where you have very little control or autonomy, preparing in advance to reclaim even a small measure of it goes a long way in managing fear.


Plasmaphoresis is a procedure where they remove the plasma from the blood and replace it with albuim from blood donors. To do this they need large bore IV access to remove your blood quickly, run it through a machine, and get it back into your system quickly. Unfortunately after 6 years of immunotherapy, my veins are not great and they cannot use my port- a - cath for this as it isnt big enough. So if I am going to be having this procedure long term I will need to have my port replaced. Which means another awake surgery (not fun). They want to see if I cope with this procedure before putting me through a surgery. We will try ultrasound guided IV access but will likely end up with a central line.... in my groin sounds like such fun, cant wait for that heavy sarcasm


So there are obviously things I am afraid of, so how can I set myself up to face it with a calm mind.


For me that looks like two things:


**Filling my soul cup before I go.** Focusing on the things that make me genuinely happy. Surrounding myself with people I love. Doing things that bring me joy. ART has a huge part in that. Art helps me cope with all the scary. Building up a reservoir of resilience so that when I'm putting my trust and body in other peoples hands, I'm drawing from a full well.


**Controlling my senses while it's happening.** Eye mask. Audiobooks and music. Perfume and essential oils. I flood my senses with things that are safe and familiar, so my brain has something beautiful to focus on instead of everything else going on around it.


Here I am in ICU, sleep headphones on playing a beautiful Audiobook, eyemask at the ready and pillow covered in lemon myrtle essential oil. Controlling what i can control the get through the uncontrollable.
Here I am in ICU, sleep headphones on playing a beautiful Audiobook, eyemask at the ready and pillow covered in lemon myrtle essential oil. Controlling what i can control the get through the uncontrollable.

And for anyone else navigating serious illness while raising small children, here's something that has worked beautifully for us.


My son is 8. We work very hard to make sure he never carries the weight of my health on his shoulders. So when I'm going into hospital, his job is to go and hug all of his soft toys and feel which one is the squishiest, the cuddliest, the one with the most healing energy and choose that plushie companion to send with me to help me get stronger.


It gives him a role. It gives him his own small measure of control. And it keeps a gentle but firm barrier between my illness and his sense of responsibility. It's one of my favourite things we've ever come up with.


Anyway, that's my update. It feels fitting that all of this is unfolding during MG Awareness Month. I really hope this treatment brings some stability. I'm going into it with a full heart, paint under my finger nails and a good playlist.


Stay colourful 🤍

 
 
 

was the title of my 60 second challenge at TEDxBrisbane. And I want to take a moment to reflect on that experience.


Chloe Wigg on the TEDxBrisbane stage. Image Courtesy TEDxBrisbane Official
Chloe Wigg on the TEDxBrisbane stage. Image Courtesy TEDxBrisbane Official

It started with Kate Fisher the force behind Milkshakes for Marleigh.



Her daughter Marleigh has autoimmune encephalitis, the same condition my dad faces, where the immune system attacks and causes inflammation in the brain. Through that connection Kate discovered I also had an autoimmune disease and was receiving IVIG for Myasthenia Gravis. Kate invited me onto her podcast to talk about the life saving and quality of life giving benefits of blood products.


I have watched her transform some of the most devastating experiences a mother can face into a national force for blood donation advocacy. Her vital work means that every single time I needed life saving IVIG, it was there. When she sent me the link to apply to be in the TEDxBrisbane audience, I was honoured. All I wanted was to sit like a proud parent and watch her shine.


I did not expect everything that followed.


I was fresh out of hospital from another scary intensification of my disease (Thank you Australian blood donors and IVIG for saving my life yet again) when I found out I had been accepted AND had the chance to submit for the 60 second challenge.


Chloe Wigg laying in a hospital bed.
Chloe Wigg laying in a hospital bed.

Living with a rare disease that up and tries to end you now and then, well it makes you live life differently. and everyone approaches that differently.


For me, I want the world to be a better place because I lived in it. All the medical trauma, all the scars and the near misses, it can't be for nothing. Every day that I am alive and breathing is a day gifted to me from blood donation and I will use that gift to give back.


Was this the best time to take on something. - NO


but this was an opportunity I could not let pass me by.


Not just for me, but for all those without a voice.


We escaped the world and went camping for the sole purpose of being uncontactable, where I couldn't have any medical appointments (... or work commitments.... woops) I drafted what I wanted to say in between enforced rest times, recovering from being unable to move or breathe. And recorded my submission on the side of the road, desperately trying to get one clean take between traffic noise, dog barks (thanks Duster) and, my favorite from Mr 8. "Can we go now?!?!?!?!"



I never expected to be picked.


I am not a CEO who flies planes on weekends for charity. I am not a groundbreaking researcher who found the cure for aging.


I am just me.


Just Chloe.


But what I chose to talk about was what I saw was deeply needed and timely. Something that shifted the conversation about access from a disability or"them" issue, to something we all deserve... because access is everyone's issue.


And that is what TEDxBrisbane is about. Yes how you speak matters. But your IDEA is the most important thing. It levels the playing field. Passionate people. With a big idea. In search of the right audience.

Then the TEDxBrisbane team showed why they are global leaders.


I experienced something I had never experienced before. An advocate. A volunteer contact who answered every question directly, who called and talked me through the location, the day and how everything will run. "What time are the breaks" "where are the wheelchair parks?" Simple questions, answered quickly, that make an enormous difference, especially when you have a complex health situation. Every detail was considered.


Then there was the 60 Second Challenge Team. Glen ... well Glen just gets stuff done. Everything was well planned, excellently communicated and as someone who had been the recipient of well meaning but poorly executed inclusion, Glen is the gold standard. He got me a head set mic because holding mics can be hard for me, he made sure we ran though getting on and off stage, that I wasn't going to get stuck on the carpet and that all the 60 Second Challenge finalists movements were similar so that the wheelchair was not going to feel out of place or "other".


Chloe Wigg and Glen Murphy behind the scenes checking accessibility prior to the 60 Second Challenge delivery.
Chloe Wigg and Glen Murphy behind the scenes checking accessibility prior to the 60 Second Challenge delivery.

Tiana worked with me to make my speech more cohesive and impactful. She was so giving with her time, knowledge and skill and is the worlds best one woman cheer squad!


Then came rehearsal night.


Chloe Wigg and Tiana Iuvale at the 60 Second Challenge rehearsal
Chloe Wigg and Tiana Iuvale at the 60 Second Challenge rehearsal

I stood (well sat) in front of Tiana, Glen, my fellow finalists - the fantastic 4 - Gaj Panagoda, Elena Sokolova and Ingrid Devlin, TEDx Speakers Fleur Madden and Molly McCluskey ... and Juanita.


Juanita, who, until that moment I had only heard spoken of with deep respect ... and ... well ....affectionate fear.


I was expecting a dragon ... and in walked this wonderful pocket rocket of a human.


I delivered my 60 second rehearsal. Fumbled a line but finished on time. And then...


Nothing. Absolutely nothing. Her face was blank.

A million thoughts spiralled until finally I blurted out "OMG your face is giving me nothing, I need you to say something!"


"It was good."


Literally no expression.


Ok. *deep breath * I can deal with good. Good can be improve on.


We talked through pace, delivery, when to pause, how to use the clock. I took every word to heart.


What I would later learn is that Juanita is not someone who spares your feelings. If she can help you, she will, and it will be direct and matter of fact. She is a deeply kind human. And blank face?


Blank face means she is delighted.

I went home and practiced. In the shower. In the mirror. I made people make unflinching eye contact with me while I recited. I wrote down exactly what second each sentence was supposed to finish on. That might sound like too much preparation. But I had a lot to prove. Not to anyone else.


To myself.


I was not chosen for optics. I was chosen because I had an idea everyone needed to hear.

The fantastic 4. Left to right: Chloe Wigg, Ingrid Devlin, Elena Sokolova and Gaj Panagoda. Behind the scenes ready to deliver their 60 Second Challenge Idea.
The fantastic 4. Left to right: Chloe Wigg, Ingrid Devlin, Elena Sokolova and Gaj Panagoda. Behind the scenes ready to deliver their 60 Second Challenge Idea.

Backstage we shook out our nerves.


I sang my power songs (Titanium and Pocketful of Sunshine) and reminded myself that no matter what, I am strong and I make my own happiness.


When I got on that stage I expected the shaking and the nerves. Instead I thought:


"this audience has no idea what is about to hit them."

I crossed my legs (like a lady) dusted off my dress, gave the audience a cheeky smile and ...


Chloe Wigg delivering her 60 Second Challenge Idea. Image courtesy TEDxBrisbane Official
Chloe Wigg delivering her 60 Second Challenge Idea. Image courtesy TEDxBrisbane Official

I smashed it.


Chloe Wigg (With an "I'm very serious" face) 60SC finalist at TEDxBrisbane. Image courtesy TEDxBrisbane Official
Chloe Wigg (With an "I'm very serious" face) 60SC finalist at TEDxBrisbane. Image courtesy TEDxBrisbane Official

I nailed it for me, and I nailed it for everyone who doesn't have a voice to say it. Universal design and accessibility benefit everyone.


But my favourite moment? Very few people saw it.


I got off that stage absolutely electric. Confirmed the microphone was off. And violently (and with absolutely no chill) celebrated, I whispered a few words I will not type here, triple fist pumped the air, happy stamped my feet....and froze like a deer in headlights.


Because there was Juanita.


Blank face.


I thought I was about to be told off for being unprofessional in the wings.


Then her face broke into the biggest smile and she whisper shouted "YES! YOU SMASHED IT!"
Juanita Wheeler and Chloe Wigg at TEDxBrisbane 2026. Image courtesy TEDxBrisbane Official
Juanita Wheeler and Chloe Wigg at TEDxBrisbane 2026. Image courtesy TEDxBrisbane Official

A double fist bump from Glen. And I floated off on a cloud (well power wheelchair but whatever)


The following photos make me so happy. They are action shots of Juanita retelling my self congratulation session back stage. It was the moment Juanita cemented herself as one of my all time favourite human beings. In a world where I am use to being "too much", and apologising for my sparkle, she celebrated it. She shouted it from the rooftops. She made me promise to never dull my shine.


Sharing that moment with my two wing women Marlisa and Sarah, that was special.


Juanita retelling the antics of back stage (with permission of course). Marlisa a little shocked, Sarah not surprised one bit and me happy to have brought so much joy through my lack of chill. Image courtesy of TEDxBrisbane Official
Juanita retelling the antics of back stage (with permission of course). Marlisa a little shocked, Sarah not surprised one bit and me happy to have brought so much joy through my lack of chill. Image courtesy of TEDxBrisbane Official
Image courtesy of TEDxBrisbane Official
Image courtesy of TEDxBrisbane Official

Left to right: Marlisa Kwan, Juanita Wheeler, Chloe Wigg and Sarah Jones. Image Courtesy of TEDxBrisbane Official
Left to right: Marlisa Kwan, Juanita Wheeler, Chloe Wigg and Sarah Jones. Image Courtesy of TEDxBrisbane Official

TEDxBrisbane is a turning point in my life. The audience was curated with precision and intention. Every single person there seemed to be genuinely trying to make the world better.


To everyone who has reached out since, who connected, who shared their own story, thank you. You are why it mattered.


And to Kate. None of this existed without you.




 
 
 

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