I was provisionally diagnosed when I was 38, it took a further 4 years for that to become a definitive diagnosis. I have severe refractory seronegative Myasthenia Gravis and my biggest challenge has been the unpredictability of life with MG. Life with myasthenia gravis is a never-ending roller-coaster ride. But it is a ride that has no map. A ride with no end in sight. There have been days of highs, when life appears to be somewhat normal. There have been days of' okay' when MG waved hello, but you can still get on with life. Then there have been lots of lows, often spending more time in hospital than out. With no map in hand, you don't know what the day might bring - will it be a high or a low? But every day you have a choice. A choice to rest or a choice to push through. You can choose to let MG defeat you, or you can adapt and find ways to overcome it. Life is too short to let MG win. So, with some adapting, we focus on living life. We are about making memories and embracing adventure. My greatest triumph has been learning how to adapt to make the most of life with my family. We just have to bring MG along for the ride. Where will this adventure take us next?