Jaymie is currently 8 years old; she was born
with a rare variant of Congenital Myasthenia
Gravis (CMG) It has taken 8 years to get a
diagnosis as it did not show up on blood tests
(Seronegative).
Our biggest challenge has been Jaymie's
fatigue and eating safety. MG-induced muscle
fatigue means choking is common.
With all we have gone through, advocating
successfully in two government systems in
Australia for my daughter has been our greatest
triumph.

CMG is lifelong and severely impact daily
function and obtaining the supports required to
support respiratory prevention, communication
expression and safe eating practises to Jaymie
and all adults responsible for her. I want the
world to know that not every case is the same
and the symptoms within the variants can be
vastly different. MG and CMG are not a one size
fits all, peoples' experiences cannot be placed
under one umbrella.