A was diagnosed with Seronegative MG after
four years of unexplained fatigue, weakness,
choking, vision problems, difficulty breathing,
and eventually losing the ability to walk.
Along the way, I faced a lot of well-meaning but
misguided medical advice that made me
question myself:
"Am I crazy?"
"Am I just bad at explaining what's happening?"
"Why can't they help me?"
Humans are incredibly adaptable when there's
no other choice. Life went on as I bounced
between specialists.
My friends adjusted to "floor meetings" when I
couldn't stand, treating 30-minute sits in the
bread aisle like the norm.
My last exhibition, Natural Resilience, pushed
my body over the edge - I could barely breathe,
speak, swallow, or open my eyes. I landed in
hospital for some of the scariest weeks of my
life.

A Mestinon trial changed everything. Suddenly,
I could walk, talk, and see again. The look of
relief in my husband's eyes is a memory I'll
treasure forever. I was told I could return to a
normal life - even remission seemed possible. I
clung to that hope.
©

But that hasn't been my reality. Life is better, but
far from "normal." I've grieved the life I had and
now do the best I can. MG is brutal and
unpredictable - some days are fine, others
terrifying. And you never know which one you'll
get.
After diagnosis, I couldn't even step into my art
studio - it represented everything I'd lost. But
after joining MGAQ and living through our first
Mestinon shortage, I realised I had a unique way
to help.
This exhibition became my lifeline and my
purpose. I'm deeply honoured by the trust the
MG community has placed in me and creating
this has truly been the work of my life.