I had symptoms for about a year, went to various doctors and was dismissed, until it progressed to a serious flare, I was diagnosed at 19. My biggest challenge with MG initially was it getting diagnosed, a whole year begging for answers and I received the classic "its stress" and "exercise more". That really impacted my mental health. Once I was diagnosed the biggest challenge has been getting the condition under control, I had 3 severe flares, and multiple hospital visits within the span of about 8 months. Mental health wise, a big challenge has been learning to live with the condition so young and coming to terms with it being for life, but slowly but surely, I'm getting everything back.
I’m feeling like I'm finally starting to beat it, I enrolled back into uni and started working again. I am finally starting to feel like myself. I also started running for exercise which feels like a massive accomplishment since previously I could hardly walk. What I’d like the world to know about MG is it is rare, but it is real. Support from family and friends is incredibly important, however it is also important to have strong support from a medical team that believes and validates you. Those with MG know themselves and condition the best, and they need to be heard.